Summary

1/14/2013--Introduced.National Pediatric Research Network Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out... Read More

Status

This bill was introduced in a previous session of Congress and was passed by the House on Feb 4, 2013 but was never passed by the Senate.

Bill Text

A BILL

To amend title IV of the Public Health Service Act to provide for a National Pediatric Research Network, including with respect to pediatric rare diseases or conditions.

Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

This Act may be cited as the ``National Pediatric Research Network Act of 2013''.

SEC. 2. NATIONAL PEDIATRIC RESEARCH NETWORK.

Section 409D of the Public Health Service Act (42 U.S.C. 284h; relating to the Pediatric Research Initiative) is amended-- (1) by redesignating subsection (d) as subsection (f); and (2) by inserting after subsection (c) the following: ``(d) National Pediatric Research Network.-- ``(1) Network.--In carrying out the Initiative, the Director of NIH, acting through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development and in collaboration with other appropriate national research institutes and national centers that carry out activities involving pediatric research, may provide for the establishment of a National Pediatric Research Network consisting of the pediatric research consortia receiving awards under paragraph (2). ``(2) Pediatric research consortia.-- ``(A) In general.--The Director of the Institute may award funding, including through grants, contracts, or other mechanisms, to public or private nonprofit entities-- ``(i) for planning, establishing, or strengthening pediatric research consortia; and ``(ii) for providing basic operating support for such consortia, including with respect to-- ``(I) basic, clinical, behavioral, or translational research to meet unmet needs for pediatric research; and ``(II) training researchers in pediatric...

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Sentiment Map

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Nation

33 Supporting
92 Opposing
26% 74%

State: CA

1 Supporting
5 Opposing
17% 83%

District: 1st

0 Supporting
0 Opposing
0% 0%

Popularity Trend

Organizations Supporting

No organizations supporting yet.

Organizations Opposing

This bill calls for the NIH to direct disease-specific research. We would prefer to let scientists determine the best course of action with their research, and to win grants based on exemplary, peer-reviewed applications. Furthermore, the directives in this bill would restrict funds for investigator-initiated research and would represent Congressional micromanagement of NIH-funded research.

Users Supporting

I support H.R. 225: National Pediatric Research Network Act of 2013 because...who would object to research in pediatric diseases.

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PA
1
TheDoc
PA-1
2 years ago

Users Opposing

I oppose H.R. 225: National Pediatric Research Network Act of 2013 because...America is broke. When are you going to stop borrowing to spend on things not in our Federal responsibility?

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FL
25
ChuckMarshall
FL-25
2 years ago

I oppose H.R. 225: We are broke, and this is just more pork. Stop the spending!

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CO
5
ScottB1966
CO-5
2 years ago

I oppose H.R. 225: National Pediatric Research Network Act of 2013 because we are broke and it is not the Federal governments place.

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MS
4
dugless
MS-4
2 years ago

I oppose H.R. 225: National Pediatric Research Network Act of 2013 because... as good intentioned as this bill might be, we do not need more expenditures, nor another level of bureaucracy to manage healthcare, this program is something easily attainable in the private sector that would cost the nation as a whole far less and the quality of service would be vastly improved.

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OR
4
MichaelWienold
OR-4
2 years ago

I oppose H.R. 225: National Pediatric Research Network Act of 2013 because...It is NOT the governments remit to be involved or to create a National Pediatric Research Network. This is to be left to the "Private" sector. Private meaning: a : intended for or restricted to the use of a particular person, group, or class, or b : belonging to or concerning an individual person, company, or interest. Just felt it was important to defin "private," as elected officials on Capitol Hill seem to be having problems with this concept. Regards, Ms. A.K. Robson

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GA
9
AndreaKRobson
GA-9
2 years ago

I oppose H.R. 225: National Pediatric Research Network Act of 2013 because we already spend millions annually both with public money and private funds to research pediatric disease and illness and although such research is a noble cause it is likely this would only replicate work already being done and finally there are not many unknown illnesses in the area of pediatrics so honestly I feel this money could be spent better elsewhere.

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OR
3
bkerensa
OR-3
2 years ago

Bill Summary

1/14/2013--Introduced.National Pediatric Research Network Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH), in carrying out the Pediatric Research Initiative, to act through the Director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development to provide for the establishment of a National Pediatric Research Network. Authorizes the Director of the Institute to award funding to public or private nonprofit entities for: (1) planning, establishing, or strengthening pediatric research consortia; and (2) providing basic operating support for such consortia, including to meet unmet needs for pediatric research and train researchers in pediatric research techniques in order to address unmet needs. Authorizes the Director of NIH to make awards for not more than 20 pediatric research consortia, which are to be formed from a collaboration of cooperating institutions, coordinated by a lead institution, agree to disseminate scientific findings, and meet requirements prescribed by the Director of NIH. Allows such support to be for a period of five years, with additional extensions at the discretion of the Director of NIH. Requires the Director of NIH to provide for the coordination of activities among the consortia and to require the periodic preparation and submission of reports on their activities. Requires each pediatric research consortium receiving an award to assist the Centers for Disease Control and Prevention (CDC) in the establishment or expansion of patient registries and other surveillance systems as appropriate and upon request by the CDC. Requires the Director of NIH to ensure that an appropriate number of such awards are awarded to consortia that agree to: (1) focus primarily on pediatric rare diseases or conditions; (2) conduct or coordinate multi-site clinical trials of therapies for, or approaches to, the prevention, diagnosis, or treatment of pediatric rare diseases or conditions; and (3) rapidly and efficiently disseminate scientific findings from such trials. Requires the Director of NIH to establish a data coordinating center to: (1) distribute such findings; (2) provide assistance in the design and conduct of collaborative research projects and the management, analysis, and storage of data associated with such projects; and (3) organize and conduct multi-site monitoring activities. Requires the Director of NIH to: (1) require the data coordinating center to provide regular reports to the Director of NIH and the Commissioner of Food and Drugs (FDA) on research conducted by consortia, including information on enrollment in clinical trials and the allocation of resources with respect to such research; and (2) incorporate such information into NIH's biennial reports.

H.R. 224 Stop Tenant Organizing Promotion Act H.R. 226The SAFER Streets Act