Summary

Neurofibromatosis (NF) occurs in one in every 3,000 births (more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined). It causes tumors to grow along the nervous... Read More

Status

Date Introduced
Mar 6, 2012

Co-Sponsors

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Nation

0 Supporting
0 Opposing
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State: CA

2 Supporting
0 Opposing
100% 0%

District: 1st

0 Supporting
0 Opposing
0% 0%

Popularity Trend

Organizations Supporting

Neurofibromatosis (NF) occurs in one in every 3,000 births (more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined). It causes tumors to grow along the nervous system and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. NF research is at a critical stage – great strides have been made but continued funding is needed to translate clinical trials into effective treatments. With your support, we can move closer to the goal of successful therapies for NF, and improve the lives of those affected.

Organizations Opposing

No organizations opposing yet.

Users Supporting

I support Continued Funding of the Congressionally Directed Medical Research Program (CDMRP) in Neurofibromatosis Research because any opportunity to improve the quality of life for a child is always worth the expense. My child has chosen to dedicate her life to children with special needs by seeking a Masters Degree in Special Education. Although not directly related, this and other similar medical research programs like this are important.

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IL
14
Anonymous1723190
IL-14
2 years ago

I support Continued Funding of the Congressionally Directed Medical Research Program (CDMRP) in Neurofibromatosis Research because...why else do we make money? What other reason are you in power if not to take care of the little ones? Breast cancer is taking care of itself, let us now turn our focus on children with NF. Meanwhile I'm going to look at my money and see what I'm able to donate.

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MO
2
Anonymous1201806
MO-2
2 years ago

I support Continued Funding of the Congressionally Directed Medical Research Program (CDMRP) in Neurofibromatosis Research because... My 2 year old daughter Samantha has NF1. There is no known cure and not many people know about Neurofibromatosis.

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TX
8
Anonymous1044074
TX-8
2 years ago

I support Continued Funding of the Congressionally Directed Medical Research Program (CDMRP) in Neurofibromatosis Research because... I was born with NF and wold love to see more research and hopefully a cure for this disorder. It is a disorder that always progresses thru life non stop. Any help would be great!

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FL
9
Anonymous2057116
FL-9
2 years ago

I support Continued Funding of the Congressionally Directed Medical Research Program (CDMRP) in Neurofibromatosis Research because... My son is 7 years old and has NF1. There is no cure, no surgery to remove his tumors. Drug trials are where we place our hope for our son's future. Please support the 1 in 3000 children and families searching for answers !

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AL
6
mossrenie
AL-6
2 years ago

Users Opposing

I oppose Continued Funding of the Congressionally Directed Medical Research Program (CDMRP) in Neurofibromatosis Research. I support continued research into this condition, but do not believe it appropriate nor necessary for such research to be taxpayer funded. The Children's Tumor Foundation has many celebrity and philanthropist supporters. Funds obtained through private non-government means should be sufficient for the continued funding of such research.

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TX
14
JVTruks
TX-14
2 years ago

Bill Summary

Neurofibromatosis (NF) occurs in one in every 3,000 births (more than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined). It causes tumors to grow along the nervous system and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. Research conducted within the Department of Defense Congressionally Directed Medical Research Program (<a href="http://cdmrp.army.mil/nfrp/default.shtml">CDMRP</a>) has made great strides, but is at a critical stage. Continued funding is needed to translate clinical trials into effective treatments. (Proposed by the <a href="http://www.ctf.org/">Children's Tumor Foundation</a>.)

x 31Requiring Congress to Review ACTA x 33Agenda 21